Sandy Beardsley
Living with a Brain Tumor
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10/26/05
Day Seven
Filed under: General
Posted by: Dan @ 8:31 am


6:30am…

Good morning… though I’m a bit ragged and bleary from another night on a hospital waiting room couch, knowing Sandy is sleeping soundly not far away fills me with a lot of joy and gratitude. She has had trouble sleeping because, as she says, "I’m just so happy to be alive, I want to enjoy every minute…" Last night I read her the new comments people have sent her — felt so good to be back in the routine of doing that every night (we had a bit of catching up to do since I couldn’t read them to her in the ICU). She really loves hearing from people and is so grateful - it has given her a lot of energy and laughs and hope.

She is sharing a room with a woman who also had brain surgery to remove a tumor - by the same doctors, just after Sandy’s surgery. I can’t even comprehend how someone can do that kind of surgery, much less do it twice (or more) in a day - truly incredible and gifted people. And Sandy is so blessed to be in their hands - the assured, calm confidence they have gives us a lot of hope.

Maybe I’ve talked too much about angels… I went for a walk yesterday over to the old part of the campus. The sun was low and lighting up everything with that warm wonderful late afternoon light. The old stone walls and arches around the big courtyards glowed in the sun or lay in warm shadows. It’s a really beautiful place and I had it almost to myself, no one around. So I’m strolling slowly along one of the long walkways along a building - stone archways on my right, and stone walls to my left - these walkways appear to go on forever when you look down them… when I started hearing a beautiful sound that slowly got louder. It sounded like a chorus of voices, low and then rising, changing tones like a Gregorian chant… but there’s no one around but an occasional student walking by. The voices seemed to be coming from the walls, echoing softly around the courtyard. I felt like I was in a movie and this was the low soundtrack background music. I walked for about five minutes, hearing this beautiful sound, wondering if it was real or if it was only what I wanted to hear and some angels were out there… when I came around a corner and found the source - a group of about 12 young men, all dressed in black pants and white shirts, standing in a small circle and singing these continuous chanting notes. I stood there awhile enjoying it, happy that I wasn’t hearing things - not that I would have minded hearing such wonderful music… then walked back to see Sandy.

Well, I have to go see if she’s waking up yet…. can’t wait to see that smile of hers. More later…



12:30pm…. at the hotel

Well, when they found me wandering the halls of the hospital carrying a volleyball and talking to it [thanks for that visual Babs.. probably not far off the mark] …Sandy kicked me out of there and back to the hotel to clean up. Unfortunately the surgery hasn’t diminished her capacity to boss me around a little bit. So I walked outside into the first cloudy rainy day we’ve had here, looked up and there’s a rainbow arcing into the hills west of here… but it was completely cloudy, never seen a rainbow without a little sun somewhere.
Don’t mind me if I’m seeing good signs in everything… life just has an intensely focused and illuminated look to it right now…. like everything is lit from within - people, the amazing artwork in the hospital hallways, flowers, old stonework, the red-tailed hawk sitting on a branch just ten feet from me, everything… not taking any of it for granted. Life is truly beautiful in ways I can’t even begin to describe. I feel like a sponge soaking it up - especially when I look at Sandy.
When you live in one and aren’t a patient, hospitals are amazing places [don’t worry, I’m not planning on moving in permanently]. It’s just that you’re surrounded by all these lives, all these stories -good ones and tragic ones - it’s like everyone’s emotions are just laid out there, nothing hidden. Or maybe it’s just me opened to seeing it clearer. But you can see the stories in their faces… the exchange of looks. Sometimes I meet eyes with someone and there’s this knowing that we’re here for someone special to us - this shared pain and fear. And then I’ll get a look from a doctor or nurse walking by and their smiles say… hang in there, it will be ok, we’re here for you….
Even the security guards are understanding. Last night in the middle of the night I was laying on this couch in the waiting room (with blankets and pillow supplied by a nurse) and heard a guard talk into his radio… "…yes, we have a guest here on B3, and he’s OK, all tucked in."
Sandy had her first solid food today and is of course quite happy about that - chicken broth for breakfast wasn’t getting it anymore. One of her doctors removed the bandage and gauze covering the surgery site… and naturally it’s quite a site indeed - about a four to five-inch diameter shaved area on the back right side of her head, with a 5-inch long incision that has been stapled with a lot of staples. But it’s healing well, that’s the main thing, no infection. And they are not going to cover the incision site anymore, just to get air to it so it will heal faster. She will get the staples (sutures they call them) taken out later next week. She’s in some more pain now that anasthesia has worn off, but some other meds are keeping pain under control.
Well, I better shower, grab my volleyball and get back to the hospital…. more later



11:00pm…. back at the hotel

First, we thank you all for the comments and emails. They lift Sandy up tremendously - the highlight of her day. Two weeks ago I didn’t really even know what a blog was. And now it’s this powerful connection with all of you that has been strengthening and heartwarming to say the least… I’ve never felt alone here.
Sandy is stable, I’m desperately in need of sleep and she kicked me back out of the hospital for the night anyway… so here I am. Feels very strange to not be near her. I may not be able to sleep here either, given the day that this has been…
A very hectic busy day for Sandy… bandages taken off (by the way, there’s about 20 staples along the incision - I counted), countless shots, lots of medicine, interviewed by medical students for more than an hour, several visits by doctors and surgical team, the great nurses checking on her, a visit by the wonderful oncologist’s nurse, a student nurse practicing her I.V. line setup on her, headaches, pain and bruising from all the shots and the I.V. port that is still in her neck, eating solid food for the first time, I read her the big bunch of wonderful notes mailed to the hotel from her coworkers at school, and even a long walk down the hallways admiring all the artwork - it was me, Sandy and her roommate (the "brain tumor babes" they call themselves) arm in arm strolling very slowly down the halls. It was good for those girls to get out of the house for awhile, but it must have been quite a site - where’s the camera when you need one. OK, maybe not.
[Some background for the next paragraph… when Sandy was diagnosed 6 years ago and had a needle biopsy of the brain tumor, we were told that brain tumors were graded on a scale of 1 to 4, with Grade 4 being the worst, fast and aggressive kind. Six years ago the biopsy indicated she had a Grade 2 - a huge relief, believe it or not.]
But the moment that will stand out today, even though we have been expecting it - given the appearance of her MRI scans, happened in an almost off-hand way — the scene was the most chaotic moment of her day. I had just been back in the room a few minutes, to find the the student nurse and her great teacher (a brain tumor survivor) setting up another I.V. line in her arm, her regular nurse for the shift (Victor, a great guy) Sandy, and I talking about the yellow "LiveStrong" wristbands we all wore and how long we each had them on… when her surgeon and his team walked into the room. He asked how Sandy was doing and then said that they had gotten the pathology report back.
"It’s a grade 4," he said.
Sandy looked over at me from her bed. Our eyes must have said it all. Even though we knew this moment was going to come sometime in these days at Stanford…. still to actually hear the words that we have dreaded for six years actually cut through the air was…
I’m back, it has been hard to write this. After some hugs and tears tonight, we reassured each other. Sandy and I know that Grade 4 is not a death sentence. Her oncologist said the other day that even if it turned out to be grade 4, he felt that it could be controlled with chemo treatments. As Sandy says, "It worked for Lance, it will work for me." She took another look at the photo of Lance during his chemo days… with that look in his eyes.
I told Sandy a week or so ago that what we’re going through is like walking up to the edge of a huge chasm, knowing that we have no choice but to jump… and the jump was the surgery. Now that she’s through that and healing - the parasails have slowed us and guided us down… but the river at the bottom of this chasm looks like it has a hell of a lot of big rapids in it….
Good night
Dan

32 Responses to “Day Seven”

  1. Babs Says:
    Hi Dear Friends, I am warmed by the entries in this site and think it is therapy for more than just the two of you! And, without a doubt, there’s that ripple affect thing going on. I have shared this site and Sandy’s website, as I’m sure others have, so don’t be surprised to be hearing from people you don’t know but who feel they know YOU! Well, I suppose I’d better get some work done, but I’d much rather be having some life-affirming experiences! Dan, I picture you looking more and more like Tom Hanks in that movie where he gets stranded on an island for several years with a ball named Wilson - you might consider a good night’s sleep and a shower for Sandy’s sake. love ya,~b
  2. Carol Truitt Says:
    Such good, good news! Talk of angels - I think Sandy may just be surrounded by her own kind. So good to imagine you in your own quieter room now, resting and recuperating, getting ready to come home to the fall colors here. Be well! Enjoy your jello!! Love Carol
  3. Esther M. Woodward Says:
    Hi Dan and Sandy - Angels….I went to an “Angel” lady, who could tell you how many angels you have and their purpose, and even their names if they have one. About a year later, after losing 2 people in my life within 2 days apart, I was very tired one evening. In an attempt to get some rest, I had remembered that I had an Angel of Peace. I prayed to that Angel…..and ultimately had the most incredible experience happen. A brush of air crossed over me (kinda like when you have an oscalating fan blow by you). It startled me so, that I rose, turned on the light to see what was in the room….just me. :) I layed back down…but felt different. Peaceful! Angels….yes, they are there! Thank you and Sandy for sharing your life. Wishing Sandy recovery and peace to both of you! Moments - Esther
  4. Danielle Munzing Says:
    Hi Dan and Sandy, I have really enjoyed reading the blog, being away from Leavenworth, I still feel like I’m in touch. I’ve been thinking of you both a lot especially since I first read Dan’s email. Stephen and I are sending lots of strong, positive thoughts your way. I’m so happy that you are having such a good experience with the people there at the hospital, it gives me goose bumps every time I read about the angels. Hugs, Danielle
  5. Caryn O\\\'Connor and mom Says:
    Hi, Kids Things look like they are going great. What an ordeal for two terrific people. Please try to get some rest, Dan. You will need all your strength to get through this. Believe me, if I hadn’t had my own angels in Corvallis last year I wouldn’t have made it. Friends are priceless as are their thoughts and prayers and acts of kindness. Love you both, Mom in Waldport.
  6. Don Virgovic Says:
    Hi Sandy and Dan - Deb and I wish you the best today and everyday. It sure sounds like things improve by the hour. We are so glad. Maybe a bit premature (then again you seem to recover really quickly) but we thought it would be a good idea to invite you both to “the barn” (which you helped build!) for thanksgiving. Hey why not? Gives you something new to think about - Just kidding! But if you can make it happen we will make it happen. If not, another time. We have a second name for the barn loft area - deb called it the “Dream Cafe.” A place to go and dream good thoughts about the future and be with friends. Wine helps too….. :) You will be home before you know it! We think of you everyday. Love, Don and Deb (D2)
  7. pk Says:
    Oops! Sorry y’all. I goofed. Hey Dan, could you please make my comments be non-published/non-posted. Obviously brevity is not a developed strength yet. I’ll send future jabbering to one of your e-mail sites! Ms. Sandy and Mr. Dan, thanks for another "subtle" wake-up that LIFE IS STILL GOOD! GO TEAM! Sending gentle flowerings from the meadows of my heart…ta, pk

    OK Patty, I reluctantly deleted it. But I got the email of it — it’s great! Thanks - Dan
  8. Tim Gartland Says:
    Hi Dan and Sandy, Fred alerted me to your surgery and has kept me posted since. Today Anne sent me the link to this blog site. Wow, this is so cool. My first blog experience I’ll have you know. All of us well wishers are are dang grateful that you know something about this technology. Very cool. The news of Sandy’s surgery was of course a shock. It never occured to me that someone who could so handily manage firewood rounds could at the same time sport a nice brain tumor as well. Hat’s off to you Sandy, you’re quite the multitasker! Anyway, although the news was quite deflating, I am so relieved that you’re in expert hands, that surgery went well and that your spirits are good. Now that I know where to find you, I’ll stop by daily to access the updates. You are both in my thoughts and have my most earnest wishes for strength and speed in your recovery. I can see from this site that you’ve quite the community surrounding and supporting you. Know now that its been extended to Gig Harbor. All the best, Tim Gartland
  9. Daniel Rife Says:
    Good morning to you also…Just a quick thought to encourage you. In Bend the colors are beautiful with the reds and yellows just past peak and falling in big bunches on the ground. Went for a road bike ride yesterday to beat the rain today and had a section of “yellow” pavement with leaves blowing around. Clear skies and wonderfully warm. Also, drove across the pass and rode the McKenzie River trail (25 miles) on Saturday and was amazed at the green carpet of moss across the forest floor including the lava rock. Green with patches of gold and yellow from the big leaf maples. When you get well and are in the area, stop and stay at Belknap Hot Springs to soak in the hot pools and enjoy the grounds. It sits on the McKenzie River and has a lodge you can stay in. Beautiful time of year….Enjoy the warmth of the weather and our prayers. Daniel
  10. Lee and Anna Says:
    A short note to let you know we are thinking of you and following your progress with great cheers of hope and tears of joy. Hang in there!! -Lee and Anna
  11. Fred Carani Says:
    Sandy, Get well soon!!!!! Dan, Take a shower for sure!! and, hurry back to a DUSEL FREE LEAVENWORTH!!!!
  12. r. alex martinez Says:
    Dan, you may not have seen the 10/17 message that went to your FS email so I’ve attached it below. Have also sent another on 10/21 to same address but that one is not suitable for posting as it’s about getting you on the leave recipient list. Glad you are on it! 10/17/05 I really appreciate all that Sandy and you are doing to share with us. I’ve read through the first 4 chapters and am very moved and grateful for your friendship and Sandy’s willingness to do this. I believe she is teaching an even larger circle of people. I will be in Olympia the next few days and will keep the two of you and your loved ones in my prayers as will so many other people. Don’t hesitate to call me 24/7 if I can be of any help in any way. By the way the bumper sticker is a great addition to my rig–thank you! R.Alex Martinez
  13. r. alex martinez Says:
    Hi Sandy and Dan, Many positive thoughts and prayers are being sent your way everyday! Thank you for all the updates, but be sure to take some time for yourselves and not get too weary. Love, r.alex martinez
  14. Susie Steblina Says:
    So great to hear things are going so well. Keep up your spirits and faith in angels and miracles. I’ve been thinking about you both every day and sending prayers. I actually thought your surgery was today, and was very happy to read the blog and know that the hardest day is now in the past. Vladimir is off bird hunting so the blog has been a great way for me to keep in touch. Love to you both, Susie
  15. Annie and Aaron Schmidt Says:
    Hi Dan and Sandy! Sue and Bill have been keeping us up to date. Please know that we are sending positive thoughts your way - from both sunny CA and sunny Baghdad. It sounds as though there have been many beautiful people along your path, and that there are many beautiful people waiting at home. Wishing you happiness and a speedy recovery - Annie and Aaron
  16. Mary Lowe Says:
    Hi both of you. Well the story is in tonights paper, and if I was more of a computer nerd I would be able to send it over to you, but sorry, I’m not so hope someone else is.. Also my coffee arrived today. Can’t wait to try it. Now this will be an adventure without you holding my hand. It is kind of cold here today. Make a Difference Day was one of a LOT of work to say the very least. I am still tired but have a CD of pictures for you both. Can’t wait for our new big room to be finished. You can tell how much I miss you can’t you? Love you both so much so here is a hug and glad you are a “Louise” and that is what is allowing you to recover so very well. That and the Angels Dan is seeing. Hugs, Mary
  17. Eric S. Beardsley Says:
    Sis,I’m glad your off the chicken broth and having your usual steak and eggs for breakfast.Now I know why a hospital stay cost so much.I’m so happy you’re back on your feet and bossing Dan around.Somebody’s got to keep him in line.Paris wants to talk with you on the phone as soon as you’re able.Oh bye the way,Paris just went poopy in the big toilet! Isn’t that just special. Hope to talk with you soon,love Eric
  18. Millie Watkins Says:
    Hi Sandy and Dan I am so pleased to hear about your progress following surgery. YOU are the main topic of conversation around school. Everybody shares their experiences in logging onto the site, I mean, even Janet admits to using a computer. Even though we are far away, you are very near to our thoughts and prayers. With such a loving husband and so many talented doctors and nurses we are feeling pretty comfortable about lending you to California for a while. But not for long. We are anxious to have you back with us. Keep up the good recovery. Millie
  19. mary pat barton Says:
    Hello Dan and Sandy - Just heard the news of your travels and surgery. Ann F. told me about these sites - They are just so beautiful. thanks for all the positive vibes you guys give out even during these times of great personnel challenges- Our thoughts and prayers are with you and you families during this healing period. John and Kathleen are living and working just 20 miles north of you in Millbrea, ca. Please Call them if you need anything John- 1-661-472-6585 . Kat’s 1-650-291-0316. Love mary pat
  20. Anne and Andre Nowacki Says:
    Dear Sandy and Dan, Despite fervent wishes sent your way, getting a note to you has been slightly delayed, because each time I read your own words and thoughts full of grace and gratefulness, infused with intense love of life and beauty and each other, and then the communications of friends and family, I develop this extreme problem with dripping eyes and bleary vision. Andre just came to my rescue with the suggestion of sending the happy, smiling photo of all of us at the celebration picnic, as a pictorial reminder that we all stand with you. We are all celebrating with you both, with every little step in healing, with every gladness. I will forward it to your dano@glaciergraphics.com website, since it can’t be sent to this comment space. Bear hugs and love to you both. See also a photo of our curious cinnamon bear visitor. She lept sideways with all four feet in the air when she caught sight of her own reflection in the glass door…(or of me behind it?) Then she ran about 15 feet away and stood and studied “it”. She apparently decided the reflection was harmless, and meandered slowly behind the house where she could peek from behind a tree and puzzle about the strange form lying on the back porch with a camera in its hands.
  21. Deb Virgovic Says:
    Good Evening Sandy and Dan! I’m in dreary Sacramento for a training session, away from home and reading the daily update (Thanks Dan). I just wanted to let you know how much both Don and I are thinking of you two. I agree with others - I believe there are angels watching over us - even moving within our midst…they inspire us, they give us strength, they care for us in ways we can’t imagine. It sounds like they have been with you both - keeping Sandy’s humor intact, floating music to Dan during his walk, giving you both needed time to heal and rest. The strength you both have to go through this so well is inspiring. And the love you have for each other is extremely moving. :) I’m anxious to see you again and give you a big hug in person instead of through the internet! All our Love, Deb and Don V.
  22. Bruce and Karen Keleman Says:
    Dear Sandy and Dan, We’re really happy to know you’re making good progress. Our best wishes for your healing and happiness are coming your way. Love, Bruce and Karen
  23. Susan Dodge Says:
    Good morning Sandy and Dan, So glad that healing is moving along well. I especially appreciated Dan’s comments about seeing people and surroundings more clearly and felt more deeply. We so often hurry through our lives, not fully seeing and appreciating all that life holds for us. Thanks to both of you for the gift of reminding us to be gratful for all we have. Keep getting ‘mo beta’ (that’s Hawaiian pigeon english for keep healing and keep smiling). Love, Susan
  24. Roger Ross Says:
    Hi Sandy; Hi Dan; Thanx for keeping all of us updated, as we care so much about you guys. Sandy -your strength, courage, and positive outlook are an inspiration. I did send my little (3′6″) personal angel your way. I am sure there is always room for more. Keep her for as long as you need, no problem, although her taste in music (country and western) is not the same as mine. But she should get along just fine with Dan’s gregorian angel….
  25. heather & pat Says:
    Dear Sandy and DanO, Oh my, grade 4. Swallow hard and keep breathing deeply. This is news we didn’t want to hear, but as you say my friends, somewhat expected. Intuitively, Sandy, you have been working magic in your body towards the necessary fight and ensuing healing to come. Take Good Care of each other, and don’t forget the “Faith of Hope” it is an attitude to cling to. A weird thing recently happened to me, and I feel there are walking angels of God here on earth - I turned your case over to my new “friend” :o ) — Lovingly, your friend and admirer and fellow laugher, Heather PS - Clover says Barky-bark-bark.
  26. Anonymous Says:
    Hi Dan and Sandy, just checked on your progress and was of course bummed to read about the level 4, but like you said Sandy “the chemo worked for Lance and it will work for Me!! When will you be able to start your training for the Tour? Soon I hope. Nothing has kept you down yet and neither will this!!!!You are truly an inspiration, Love,Your sister-in-law
  27. Lee and Anna Says:
    Only wisps of fog along the river this morning — blades of grass and fallen leaves rimed with fall’s first hard frost. The poplars catch the morning light and glow twice as bright…from within. Thinking of you guys so much. Hold tight! –Lee and Anna
  28. Laurie Hough Says:
    Dan and Sandy, I have just read your running account Dan, (in tears and smiling at the same time) I am the mother of Alex (3rd grade) and Sophie (1st grade). You are constantly on our hearts, prayers and minds. The girls (and I) are going thru some tuff times right now. (Their Father has a girlfriend and has filed for divorce after 27 years of marriage) Anyway- not to share my troubles but to let you know how much you are in our prayers. Each night and at each meal we pray. The girls pray a little God is Good type prayer with each meal and at the end it is always finished with “God please bring my Daddy Home and Please God be with Mrs B” Amen Each night the prayers are a slightly different in words but in thought and feelings very much the same message. “Please God…….Bring my daddy back & please God make Mrs. B Well. AMEN So Sandy and Dan, you can put three more on your list of prayer warriors, two that are small but oh so mighty. Take Care, Laurie
  29. Kim Flotlin Says:
    Dear Dan and Sandy: Glad to hear that things are progressing positively. I’m sending good thoughts winging your way - I’m sure they will be sheparded to you by all those angels hanging around! I myself am a firm believer in such things - else how do you explain that face that you catch sight of out of the corner of your eye, but that’s gone in the split second’s time it takes to turn your head? Or that feeling of someone right behind you, but you turn and there’s noone there? I’m convinced my kids have several each, ‘cuz otherwise I’m sure they wouldn’t have made it through their short lives so seemlessly! Likewise, I’m sure you have several that are hovering around, offering silent but powerful support to you both. Perhaps they are, in part, a host for all of the loving thoughts that are being sent your way by those who care and are thinking of you. Based on what I’ve read, you must have a whole flock of angels around you, carrying the love of all those people and reflecting it back onto you, in just the way that is most needed. Take care and know that we are thinking of you! Kim, Tim, Hannah, and Sarah
  30. Bill and Pam Owen Says:
    Hi, Sandy and Dan, We have been keeping up with you through your web site and especially through Eric and Glenna. We both admire you so much for your positive attitude and outlook. You do a good job of making everyone else feel good, and it should be the other way around! You both are excellent writers. Having read so many poorly written student reports, it is a pleasure to read your descriptions of various things. I recall the Stanford campus as being a beautiful place, too; I went to my brother’s law school graduation there. Keep up the positive thoughts. You two deserve the best. Love, Bill and Pam
  31. CarolAnn, Shaun and Claire Says:
    Good Morning Sandy and Danno! Thank you for a wonderful journey through the land of angels and miracles. We send our happy thoughts, love and energy to you both, for healing and strength. It is a constant flow, as I have been thinking of you throughout the days! Now, for the local news. . . Claire is going to be an angel (go figure) for Halloween and the parties are stacked like planes over Seatac waiting to land. We have carved 13 pumkins, including some happy, scary, silly, and confused. We lite them up at night and lay on pillows looking at them and talk about their expressions. Sure beats primetime TV. There are bears all around us in the orchards and we’ve seen acouple. It’s fun, they are very cute, however we are cautious in our comings and goings. We love and and send happy hugs! -C
  32. Lisa Therrell Says:
    Egads Dan– you are such a good writer. All I can do is laugh and cry my way through these entries. Hurray that you are now home, home, home. I’m glad the cottonwoods and red osier dogwoods hung onto a few leaves for your re-entry but the landscape is snow-kissed with a promise of a good winter to come too. Sandy and Dan– just keep on visualizing healing energy repairing the cells of Sandy’s brain. Bathe in the light of that consciousness. Thanks for sharing so openly and so beautifully from your hearts. With great admiration– Your friend Lisa T.

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